Ryan has neurofibromatosis, a disease that causes the growth of tumors which also can make bones brittle. It's incurable.
"To pronounce the word, let alone spell it, was a problem in itself. So there was a large amount of research to find out exactly what this disorder was," said Shawn Feeney. "We've experienced a pretty tough journey together with Ryan over the last two years to obtain him to where he is nowadays. We were faced with the decision following doing surgery on their leg and chose amputation Replica Louis Vuitton Shoes to present him the best option to live a good, healthy life without excessive concern."
Ryan's leg ended up being amputated when he was 20 months aged to stop the leg from breaking and to ease his discomfort.
"Here he is today. He's an amazing, wonderful handsome little boy that's no fear," Shawn Feeney reported.
Sometimes called NF, the disease is also known for "caf au lait" birthmarks and the growth of a number of tumors.
Ryan's parents are known for their tireless efforts to raise money as well as awareness of NF.
"NF affects one out of A few,000 births and that's a lot of kids being born with NF, but the truth is don't hear about it as frequently other disorders," Tomi Feeney said.
Ryan will Nike Store need a fresh leg about every On the lookout for to 12 months as he develops.
"My favorite person from the Bruins can Oakley Sunglasses Nz Sale be Patrice Bergeron," Ryan said.
Hence for his new prosthetic knee he wanted to get a image of Bergeron's face on the leg, he had to settle with the Bruins logo.
May is Neurofibromatosis Recognition month. The Feeney's are using on this occasion to let others know about the genetic disease.
"We don't look at for instance 'woe is us.' We look at Replica Louis Vuitton Luggage it like what can many of us Cheap Tiffany Engagement Rings do to raise awareness," mentioned Shawn Feeney.
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